Data Sharing and Privacy Protection
Sharing people’s health, genetic, or environmental exposure data through large online databases can accelerate biomedical research and support policy-making. It also creates privacy risks.
Media coverage
How Trump’s ‘Secret Science’ Rule Would Put Patients’ Privacy at Risk
January 2020, InsideClimate News
Full Disclosure of Data Sharing in Human Research Encourages Patient Participation
February 2016, Oncology Nurse Advisor
Sharing Health Data Online
February 2016, The New York Times