Sharing people’s health, genetic, or environmental exposure data through large online databases can accelerate biomedical research and support policy-making. It also creates privacy risks.

Publications and Presentations

Udesky, J.O., K.E. Boronow, P. Brown, L.J. Perovich, J.G. Brody. 2020. Perceived Risks, Benefits, and Interest in Participating in Environmental Health Studies That Share Personal Exposure Data: A U.S. Survey of Prospective ParticipantsJournal of Empirical Research on Human Research Ethics15(5):425-442. doi: 10.1177/1556264620903595

Article

Boronow, K.E., L.J. Perovich, L. Sweeney, J.S. Yoo, R.A. Rudel, P. Brown, J.G. Brody. 2020. Privacy Risks of Sharing Data from Environmental Health Studies, Environmental Health Perspectives. 128(1):17008. doi: 10.1289/EHP4817

Article

Sweeney L, J. Yoo, L. Perovich, K. Boronow, P. Brown, J. Brody. 2017. Re‐identification Risks in HIPAA Safe Harbor Data: A study of data from one environmental health study. Technology Science. 2017082801.

Article

Zarate, O., J.G. Brody, P. Brown, M.D. Ramirez-Andreotta, L. Perovich, J. Matz. 2015. Balancing Benefits and Risks of Immortal Data: Participants’ Views of Open Consent in the Personal Genome Project. The Hastings Center Report, 46(1):36-45. doi:10.1002/hast.523

Abstract