Data Sharing and Privacy Protection

Sharing people’s health, genetic, or environmental exposure data through large online databases can accelerate biomedical research and support policy-making. It also creates privacy risks.

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Publications and Presentations

Udesky, J.O., K.E. Boronow, P. Brown, L.J. Perovich, J.G. Brody. 2020. Perceived Risks, Benefits, and Interest in Participating in Environmental Health Studies That Share Personal Exposure Data: A U.S. Survey of Prospective Participants. Journal of Empirical Research on Human Research Ethics. 15(5):425-442. doi: 10.1177/1556264620903595

Article

Boronow, K.E., L.J. Perovich, L. Sweeney, J.S. Yoo, R.A. Rudel, P. Brown, J.G. Brody. 2020. Privacy Risks of Sharing Data from Environmental Health Studies, Environmental Health Perspectives. 128(1):17008. doi: 10.1289/EHP4817

Article

Sweeney L, J. Yoo, L. Perovich, K. Boronow, P. Brown, J. Brody. 2017. Re‐identification Risks in HIPAA Safe Harbor Data: A study of data from one environmental health study. Technology Science. 2017082801.

Article

Zarate, O., J.G. Brody, P. Brown, M.D. Ramirez-Andreotta, L. Perovich, J. Matz. 2015. Balancing Benefits and Risks of Immortal Data: Participants’ Views of Open Consent in the Personal Genome Project. The Hastings Center Report, 46(1):36-45. doi:10.1002/hast.523

Abstract